15-09-2017 07:00 AM
15-09-2017 07:00 AM
Enjoy, @eth. I'm fading too. Ciao for now. ox
15-09-2017 07:06 AM
15-09-2017 07:06 AM
See you later @Mazarita. Thanks again for whiling away the wee hours with me. Sleep well x
15-09-2017 10:29 AM
15-09-2017 10:29 AM
Hello Mazy @Mazarita,
I didn't know anti-inflammatory's could affect the moods, I guess any medication can affect individuals in any manner. Now you've got me thinking, I did run out for a few days, I didn't think anything of it, but it did coincide with my little hic-up with the center of my Universe - maybe they affect me in a positive way, merely the alleviation of discomfort. How did the anti-inflammotory's affect you? I also suffered nausea for almost a year due to neuro-biological disorders, I don't think that's the way to go either. I feel for your fear and dread, I think the worst feeling is helplessness - and that your own body is causing this {I understand that a little}, how less helpful can a person feel? There are always new med's, though I worry that they will have new affects, particularly being mixed with your psych ones; but it's always good to think positively, maybe the combination will kick in your natural high and you will be editing videos that are the best you've ever done before you know it 🙂
My Mother had a large section of her bowel removed, I remember discovering that it was one of the most painful operations to recover from, as it goes through the abdominal muscles. That you've been through 2 of those surgeries must be a cruel memory. My Mothers surgery saved her life for a while, did you eventually feel better for having those operations? Does meditation or natural remedies help? I'm imagining you've tried everything, and that you will use a combination of anything that helps. Have you heard of the new fad, I think it's called 'eye-staring'; it's odd for someone like me who has such a fear/mistrust of people, the thought of staring into a strangers eyes really appeals to me 🙂 I think it's supposed to stimulate the brain, a bit like neuo-plasticity?
Thank-you for hearing me about the center of my Universe You are right, they are adults and I can find positivity in the fact that they can make there own decisions, good and bad. I see that they are living their own lives, and believe that cannot be a bad thing. Just as my child can make their own decisions, so can I; and just because those decisions are different doesn't make either of them wrong.
Strengthening the love in the stream
Niqua
15-09-2017 11:00 AM
15-09-2017 11:00 AM
Warning: more medical stuff.
Hi Niqua,
Lovely to get your long message this morning.
The anti-inflammatories I'm referring to are a steroid medication, stronger than the usual anti-inflammatory and with a much nastier side effect profile, known to trigger bipolar. But I love your suggestion of a different med that might instead swing me into genius video making.
I will be negotiating the treatments carefully, but for some reason I find it difficult to stand up for myself with these things with doctors of this kind. I have had a far better time of it with psychiatrists than with gut specialists. For example, when I was trying to talk to one of my gastros about the severe depression I was experiencing while on this aforementioned medication, she answered, 'have a baby, then you won't have time to be depressed'.
The surgeries I've had were the most effective of all treatments I've had for Crohns. They were very hard to go through, especially the first one that had me in hospital for six weeks. But they have given much more lasting relief. Where I seem to have the inflammation now though is not an area that can be surgically removed without disastrous consequences. I've been meditating, sometimes in a formal way, sometimes ad hoc, since I first got the disease 37 years ago. It has helped, though I'm obviously still a worry wort. You should have seen what I was like then though. The inner stress and emotional conflicts I put myself through back then were intense.
I went through a long (and expensive) phase of trying natural remedies and therapists. They were simply not strong enough to deal with seriously inflamed and scarred intestine.
I have done that 'eye staring' you mention when I was a drama student. It was fantastic. I hope some of that fad comes this way.
You may be onto something there with the idea that neither you nor your child and partner are wrong.
Wonder what you have been up to lately aside from worrying, hehe. And what's happening today. I've had a few hours sleep after an all-nighter working on video and otherwise fluffing around. Still have the blinds drawn. I'll open them before long. But for now I'm enjoying the peace and quiet of sitting here in my nightie still, deferring the start of this day. That's okay, you might agree, sometimes withdrawal feels replenishing.
In any case your post inspired me to reach out to you in this closed in flat this morning. Love and warmth to you.
@Former-Member
15-09-2017 06:09 PM
15-09-2017 06:09 PM
Hi @Mazarita I've just done a rant on the "Anyone started with the NDIS?" thread. Had bad news again today. F'd up and getting to me. Will be back on here later tonight no doubt.
15-09-2017 07:21 PM
15-09-2017 07:21 PM
Hi @eth, I am on mobile away from home. Read your news. Will be online later but just wanted to send support and hugs. ox
15-09-2017 08:59 PM
15-09-2017 08:59 PM
Ho are you both ? @Faith-and-Hope @CheerBear hello,hello ! Hello @Former-Member how are you ? My name is @PeppiPatty.....I've been on break for a while.......
It's so good to 'see you all, look at @Mazarita giving her very focused care.......
15-09-2017 09:33 PM
15-09-2017 09:33 PM
and @Mazarita needing it.
@PeppiPatty You been AWOL for ages girlie, but we love you coming back.
What a totally dumb thing for that gut lady to say.
It takes time and energy to flick off all those random comments we collect over the years.
15-09-2017 09:56 PM
15-09-2017 09:56 PM
Huh ? Wha? Apple......great to thee you. I have missed you but really needed the break.....oh, this thread I can rant on about what has been happening......
Coooolll...........
15-09-2017 10:18 PM - edited 15-09-2017 10:40 PM
15-09-2017 10:18 PM - edited 15-09-2017 10:40 PM
G'day G'day.....Okay, BeeGee's are playing..... about two months ago, I was listening to a radion station late night and winning prizes and then giving my winning cds to people, one which was the new Bee Gee cd, but I gave it away......I should have kept it.........
I digress.
I love writing that.
I digress.
Everyone, hi, @Appleblossom@A2Z @Nell123
@eth @Mazarita @CheerBear @Former-Member
So About the beginning of the year, I was noticing Mr X, my husband was not his usual self when he was smoking cigarettes or drinking alcohol. He rarely drank but with two of his oldest friends, he still drank a horrendous amount......skull skull skull for a long time etc. One day, I went to wake him up...he was sitting up and asking for coffee and usual stuff
can be so annoying.....
But he wasn't l talking to me.....
So I rang his Mum, my Mum .we were all getting together ...I rang the hospital and they say call an ambulance but I hung up when they tranferred the call....
.his Mum says."Shake him and say, "Mr X, you are scaring me, I am now calling an ambulance," so I did. The ambulance poeple were amazing but say, What took you so long to call us? I said because he was sitting up and talking to me and it took a while for me to work out what was happening and yes, I do have my first Aid.
So he's in hospital for one week.....he couldnt hear, see or walk. The Doctors say if he has one cigarette or one glass of alcohol, he is going to die.
Since then, Since Beginning of April, his friends keep on giving him that one last cigarette or glass of wine. I cannot stand these friends, we all went to High School together. They are extraordinarily selfish.
Yesterday I told them all that Mr X is banned going to their home, The last hospital visit was last week for one week. I needed a rest for two hours and MADE these two friends PRomise that they would not feed him alcohol or cigarettes.
I took him home. I was waking him every hour to make sure he was talking which was was. because sleeping on the couch for 72 hours...I rang another ambulance. It took a few days before I got the truth out of the three of them but Mr X was fed 2 large glasses of wine, 2 glasses of whisky, a cone of pot and smoking.
This week, I have been visiting for all day. I remembered that these certain friends didn't believe that he has a mental illness and fed him drugs and alcohol whenever he went to hosital. He would be in a Psych hospital and they would bring it all in and he got this terrible name.
So, he's banned.
Next chapter: Can I write about my new ways of self care.
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