Lived Experience Forum

[Sans911]

Sitting with you lil Sis @outlander 💜 💜 💜

[outlander]

Thanks @eth it wasnt to good unfortunately 😞

Thanks sis 💜 its been a hard day @Sans911

[Sans911]

I figured that might be the case @outlander 💜 💜 💜

I'm here all evening. Not going anywhere

[outlander]

I don't know what to do with myself anymore @Sans911 everytime I go somewhere there always seems to be something new to contend with, usually bad things like again today. it worries me when another specialist is getting concerned and then having to work out where to fit everything into my schedule. 24 hours in a day sometimes just doesn't seem enough and sometimes it feels like way to many hours

[outlander]

@Snowie @Former-Member 👋💙

[Sans911]

Oh @outlander that's not the news you wanted to hear. I'm so sorry. Your life is fraught with so many challenges if your own and others. I really don't know what to say.

And hugs for my angel 😔

[outlander]

its hard, I sat here for ages earlier trying to work out where im suppose to fit everything between the kids horses my own appointments and pops as well. I have a diary plus a calander on my computer where I write everything all out so when I ring for appointments I can see all the dates/times right in front of me rather then flicking through pages. I can take the kids to some things and they can wait in the waiting room but not all of them. I had to ask mum to take 2 specific dates off work just to fit in what I need. I know it shouldn't be that way but unfortunately it is is.

the surgeon today said its going to be quite a long road to recovery for my teeth and jaw but its more then likely still going to be permanent its more just monitoring it again. we spoke of a few symptoms that have continued on or have worsened due to the op and shes urged my to see my gp because she thinks its more then a post op complication so its abit worrying what the gp may say since theres been 2 brain tumours also on my fathers side of the family. one of my teeth have twisted- bit weird to explain and she said its abit unusual but not totally uncommon since I have either tooth each side removed around it but that's out of her area of expertise as well so she wants me to speak to my dentist (which I now have to find one again) and then ask to see an orthodontist to see what they can do for it.

im struggling a lot to fit things together, deal with pain which is one of the hardest ones since its affecting me in many ways, manage everything. its tiring and its hard to breathe @Sans911

[outlander]

Im sorry, i shouldnt be putting this on anyone. Its hard having no one offline, the only people who speak to me is if they need something. I shouldnt really complain, mums who work should have a life too. I guess its been a long day with being on a train for 6 hours. Usuallu its 4 but with the wild weather that hit in the arvo there were alot of delays

[Sans911]

Put it on me anytime lil Sis @outlander 💜 💜

That's what we are here for. As a sounding board, talk it over, talk it out, get support, encouragement, validation and most importantly 💜.

Your mum (if that is what you are referring to) has a life. She's so lucky that you take care of your sisters. If she has to take time out for you to deal with health issues, then that's important and valid.

Yes I heard about the wild weather that you had. It's been a long, exhausting day for you. Have you had a cup of tea and something to eat?

It's a long road ahead for you with your physical health but maybe there be some more recovery. And hopefully no other health issues or problems.

[outlander]

Thanks sis 💜 @Sans911
I had a cup of tea earlier but i dont feel like eating anything atm it just causes more pain anyway and seems the 4th dose of pain meds is finally starting to help settle things down abit so dont want to stir it up again now.

The weather hit really badly here and trains were basically cancelles after mine but it passed quite quickly. Left a path of destruction basically the east coast of nsw qld and in canberra too so lots of repairs happening.


I dont really want to go back to the drs, but i know i should. Just feels like my life is on repeat or something

Ive been having more nightmares flashbacks and those weird dissociative visions too so its making things harder then it needs to be. Not sure whats bringing them on though but i guess it could really be anything.